Amplifying Global Voices for Duchenne
A global community-driven initiative advancing the rights and well-being of people living with Duchenne muscular dystrophy.
A Global Voice for Every Duchenne Journey
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
Duchenne Awareness Day
The UN has declared a global day to elevate Duchenne awareness and unite the world in support.
What is Duchenne?
Duchenne Muscular Dystrophy (DMD) is a rare progressive disorder. People with DMD are missing muscle-protecting protein. This is due to a fault in the gene producing dystrophin. Muscles to become weaker over time until it affects the whole body. It is caused by a mutation on the X-chromosome, that is why mainly males are affected.
Approximately
boys and men are living with DMD Globally.
About
new cases are diagnosed each year worldwide.
Approximetely
of boys require a wheelchair full-time.
Duchenne Stories Around the World
Voices4Duchenne is a global, community-driven initiative dedicated to advancing the rights, visibility, and well-being of people living with Duchenne muscular dystrophy and their families. Through advocacy, storytelling, and international cooperation, we work to elevate Duchenne on the world stage.
Our Vision
Establish a comprehensive international framework or convention that protects the rights, needs, and dignity of people with Duchenne and rare diseases as a whole, grounded in principles of accessibility, inclusion, non-discrimination, and participation.
Join the Movement
Become involved and stay up to date with all the latest news.